Le vécu des proches en réanimation

Le vécu des proches

Le vécu des proches de patients hospitalisés en réanimation

Kentish-Barnes N, Cohen-Solal Z, Souppart V et al. Being Convinced and Taking Responsibility: A Qualitative Study of Family Members’ Experience of Organ Donation Decision and Bereavement After Brain Death. Crit Care Med. 2019 Apr;47(4):526-534. doi: 10.1097/CCM.0000000000003616. PMID: 30608283.

Kentish-Barnes N, Siminoff LA, Walker W et al. A narrative review of family members’ experience of organ donation request after brain death in the critical care setting. Intensive Care Med. 2019 Mar;45(3):331-342. doi: 10.1007/s00134-019-05575-4. Epub 2019 Mar 6. PMID: 30840119.

Kentish-Barnes N, Chevret S, Cheisson G et al. Grief Symptoms in Relatives Who Experienced Organ Donation Requests in the ICU. Am J Respir Crit Care Med. 2018 Sep 15;198(6):751-758. doi: 10.1164/rccm.201709-1899OC. PMID: 29553799.

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Kentish-Barnes N, Seegers V, Legriel S et al. CAESAR: a new tool to assess relatives’ experience of dying and death in the ICU. Intensive Care Med. 2016 Jun;42(6):995-1002. doi: 10.1007/s00134-016-4260-4. Epub 2016 Mar 7. PMID: 26951427.

Kentish-Barnes N, Azoulay E. The vulnerable family. Crit Care Med. 2012 May;40(5):1667-8. doi: 10.1097/CCM.0b013e3182474c0d. PMID: 22511154.

Lemiale V, Kentish-Barnes N, Chaize M et al. Health-related quality of life in family members of intensive care unit patients. J Palliat Med. 2010 Sep;13(9):1131-7. doi: 10.1089/jpm.2010.0109. PMID: 20836638.

Kentish-Barnes N, Lemiale V, Chaize M et al. Assessing burden in families of critical care patients. Crit Care Med. 2009 Oct;37(10 Suppl):S448-56. doi: 10.1097/CCM.0b013e3181b6e145. PMID: 20046134.

Ciroldi M, Cariou A, Adrie C et al. Ability of family members to predict patient’s consent to critical care research. Intensive Care Med. 2007 May;33(5):807-813. doi: 10.1007/s00134-007-0582-6. Epub 2007 Mar 15. PMID: 17361388.

Azoulay E, Pochard F, Chevret S et al; FAMIREA Study Group. Half the family members of intensive care unit patients do not want to share in the decision-making process: a study in 78 French intensive care units. Crit Care Med. 2004 Sep;32(9):1832-8. doi: 10.1097/01.ccm.0000139693.88931.59. PMID: 15343009.

Pochard F, Azoulay E, Chevret S et al; French FAMIREA Group. Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity. Crit Care Med. 2001 Oct;29(10):1893-7. doi: 10.1097/00003246-200110000-00007. PMID: 11588447.

Azoulay E, Pochard F, Chevret S et al; French FAMIREA Group. Meeting the needs of intensive care unit patient families: a multicenter study. Am J Respir Crit Care Med. 2001 Jan;163(1):135-9. doi: 10.1164/ajrccm.163.1.2005117. PMID: 11208638.

Azoulay E, Chevret S, Leleu G et al. Half the families of intensive care unit patients experience inadequate communication with physicians. Crit Care Med. 2000 Aug;28(8):3044-9. doi: 10.1097/00003246-200008000-00061. PMID: 10966293.

Symptômes post-réanimation des proches

Azoulay E, Resche-Rigon M, Megarbane B, et al. Association of COVID-19 Acute Respiratory Distress Syndrome With Symptoms of Posttraumatic Stress Disorder in Family Members After ICU Discharge. JAMA. 2022;327(11):1042–1050. doi:10.1001/jama.2022.2017

Kentish-Barnes N, Cohen-Solal Z, Morin L et al. Lived Experiences of Family Members of Patients With Severe COVID-19 Who Died in Intensive Care Units in France. JAMA Netw Open. 2021 Jun 1;4(6):e2113355. doi: 10.1001/jamanetworkopen.2021.13355. PMID: 34152418; PMCID: PMC8218069.

Laurent A, Reignier J, Le Gouge A et al. « You helped me keep my head above water »-experience of bereavement research after loss of a loved one in the ICU: insights from the ARREVE study. Intensive Care Med. 2019 Sep;45(9):1252-1261. doi: 10.1007/s00134-019-05722-x. Epub 2019 Aug 12. PMID: 31407041.

Kentish-Barnes N, Chaize M, Seegers V et al. Complicated grief after death of a relative in the intensive care unit. Eur Respir J. 2015 May;45(5):1341-52. doi: 10.1183/09031936.00160014. Epub 2015 Jan 22. PMID: 25614168.

Accompagnement des proches dans les services de réanimation

Kentish-Barnes N, Chevret S, Valade S et al. A three-step support strategy for relatives of patients dying in the intensive care unit: a cluster randomised trial. Lancet. 2022 Feb 12;399(10325):656-664. doi: 10.1016/S0140-6736(21)02176-0. Epub 2022 Jan 19. PMID: 35065008.

Azoulay É, Curtis JR, Kentish-Barnes N. Ten reasons for focusing on the care we provide for family members of critically ill patients with COVID-19. Intensive Care Med. 2021 Feb;47(2):230-233. doi: 10.1007/s00134-020-06319-5. Epub 2020 Nov 24. PMID: 33231733; PMCID: PMC7685190.

Azoulay E, Kentish-Barnes N. A 5-point strategy for improved connection with relatives of critically ill patients with COVID-19. Lancet Respir Med. 2020 Jun;8(6):e52. doi: 10.1016/S2213-2600(20)30223-X. Epub 2020 May 4. PMID: 32380024; PMCID: PMC7198186.

Kentish-Barnes N, Chevret S, Azoulay E. Guiding intensive care physicians’ communication and behavior towards bereaved relatives: study protocol for a cluster randomized controlled trial (COSMIC-EOL). Trials. 2018 Dec 22;19(1):698. doi: 10.1186/s13063-018-3084-7. PMID: 30577862; PMCID: PMC6303988.

Azoulay E, Forel JM, Vinatier I et al. Questions to improve family-staff communication in the ICU: a randomized controlled trial. Intensive Care Med. 2018 Nov;44(11):1879-1887. doi: 10.1007/s00134-018-5423-2. Epub 2018 Oct 21. PMID: 30374690.

Kentish-Barnes N, Cohen-Solal Z, Souppart V et al. « It Was the Only Thing I Could Hold Onto, But… »: Receiving a Letter of Condolence After Loss of a Loved One in the ICU: A Qualitative Study of Bereaved Relatives’ Experience. Crit Care Med. 2017 Dec;45(12):1965-1971. doi: 10.1097/CCM.0000000000002687. PMID: 28857855.

Kentish-Barnes N, Chevret S, Champigneulle B et al; Famirea Study Group. Effect of a condolence letter on grief symptoms among relatives of patients who died in the ICU: a randomized clinical trial. Intensive Care Med. 2017 Apr;43(4):473-484. doi: 10.1007/s00134-016-4669-9. Epub 2017 Feb 14. PMID: 28197680.

Davidson JE, Aslakson RA, Long AC et al. Guidelines for Family-Centered Care in the Neonatal, Pediatric, and Adult ICU. Crit Care Med. 2017 Jan;45(1):103-128. doi: 10.1097/CCM.0000000000002169. PMID: 27984278.

Azoulay E, Kentish-Barnes N, Nelson JE. Communication With Family Caregivers in the Intensive Care Unit: Answers and Questions. JAMA. 2016 May 17;315(19):2075-7. doi: 10.1001/jama.2016.5637. PMID: 27187298.

Kentish-Barnes N, Azoulay E. The Challenge of Addressing Family Needs at the End of Life. Am J Respir Crit Care Med. 2016 Jan 15;193(2):108-10. doi: 10.1164/rccm.201509-1913ED. PMID: 26771412.

Moreau D, Goldgran-Toledano D, Alberti C et al. Junior versus senior physicians for informing families of intensive care unit patients. Am J Respir Crit Care Med. 2004 Feb 15;169(4):512-7. doi: 10.1164/rccm.200305-645OC. Epub 2003 Dec 4. PMID: 14656750.

Azoulay E, Chaize M, Kentish-Barnes N. Involvement of ICU families in decisions: fine-tuning the partnership. Ann Intensive Care. 2014 Nov 30;4:37. doi: 10.1186/s13613-014-0037-5. PMID: 25593753; PMCID: PMC4273688.

Peigne V, Chaize M, Falissard B et al. Important questions asked by family members of intensive care unit patients. Crit Care Med. 2011 Jun;39(6):1365-71. doi: 10.1097/CCM.0b013e3182120b68. PMID: 21358395.

Azoulay E, Lautrette A, Peigne V et al. Communiquer avec les families des patients en réanimation [Meeting the needs of families of patients in intensive care units]. Bull Acad Natl Med. 2011 Feb;195(2):367-75; discussion 375-6. French. PMID: 22096875.

Lautrette A, Darmon M, Megarbane B et al. A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med. 2007 Feb 1;356(5):469-78. doi: 10.1056/NEJMoa063446. Erratum in: N Engl J Med. 2007 Jul 12;357(2):203. PMID: 17267907.

Fassier T, Darmon M, Laplace C et al. One-day quantitative cross-sectional study of family information time in 90 intensive care units in France. Crit Care Med. 2007 Jan;35(1):177-83. doi: 10.1097/01.CCM.0000249834.26847.BE. PMID: 17079999.

Azoulay E, Pochard F, Kentish-Barnes N et al; FAMIREA Study Group. Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med. 2005 May 1;171(9):987-94. doi: 10.1164/rccm.200409-1295OC. Epub 2005 Jan 21. PMID: 15665319.

Pochard F, Darmon M, Fassier T et al; French FAMIREA study group. Symptoms of anxiety and depression in family members of intensive care unit patients before discharge or death. A prospective multicenter study. J Crit Care. 2005 Mar;20(1):90-6. doi: 10.1016/j.jcrc.2004.11.004. PMID: 16015522.

Azoulay E, Pochard F. Communication with family members of patients dying in the intensive care unit. Curr Opin Crit Care. 2003 Dec;9(6):545-50. doi: 10.1097/00075198-200312000-00014. PMID: 14639077.

Azoulay E, Pochard F. Meeting the needs of intensive care unit patients’ family members: beyond satisfaction. Crit Care Med. 2002 Sep;30(9):2171. doi: 10.1097/00003246-200209000-00053. PMID: 12352075.

Azoulay E, Pochard F, Chevret S et al. Impact of a family information leaflet on effectiveness of information provided to family members of intensive care unit patients: a multicenter, prospective, randomized, controlled trial. Am J Respir Crit Care Med. 2002 Feb 15;165(4):438-42. doi: 10.1164/ajrccm.165.4.200108-006oc. PMID: 11850333.